Tiamat (tiamat_dragon) wrote in fibroinwomyn,
Tiamat
tiamat_dragon
fibroinwomyn

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Hi my name is Tiamat and I thought that it was time I joined a community that discussed fibromyalsia. I was recently diagnosed as having it after many years of my symptoms being ignored and attributed to other things. I feel that I am alone and lost in this. A Rhematoidlogist diagnosed me and sent me back to my regular doctor saying that she couldn't do anything aside from prescribing me meds and therapy. So, I am on Nortriptyline and Etodolac. I couldn't go to therapy, because of lack of money. So instead I am taking Adapted Swimming classes at my community college. When I went to my regular doctor, she said that it was a ficticious disease. I cried that day. Somehow I thought that once I got diagnoised with something that I would get better, or at least have it somewhat controlled better. I am more miserable now than when I was first diagnosed.

I keep getting worse.
I feel lost and confused.
I can't even have a job.

I want to go on perment disability, because I know that I will probably never be able to work full-time again. It used to break my heart that I couldn't work full time, but as time has gone buy I have let go of the idea. I chose instead to reassure myself saying that at least I got to have a career no matter how brief it was. My aunt told me that I cannot live in the past and need to find a way to move forward.

Okay so here's my problem:
I need to get on SSI disability, but I don't know how to approach it. In order to get started on that I need a doctor that actually believes in my disorder. I just feel like a chicken with it's head cut off most of the time. It's depressing and I don't know where to start. I don't know if any of you all can help me, but maybe you can... Maybe I will feel better talking about it with people that understand.
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